Hospice — 6 Comments

  1. My wife and I visited Madelon in the nursing home every Sunday for over eight years. She had gone there initially for hospice care but had improved and entered long term care. Later, she would be put on hospice care again. In fact, she was on hospice care a total of five times! Each time with hospice workers visiting her and giving her their loving care — personal care like nails and hair, visiting with quality listening time, and in general just “loving on her” — with this quality of care, Madelon would improve and no longer qualify for hospice services. She was our “energizer bunny” friend who loved our weekly times of sharing and mini-church services right there in her room. This experience showed us that hospice has a very real impact on the life and well-being of the person receiving such care. We are grateful for this time of walking with a precious saint while she gave the last yers of her life sharing her joy with everyone around her. And we really appreciate how hospice care can be the blessing that makes living your last days more joyful and fulfilling.

  2. My husband Bob was finally admitted to Hospice care five days prior to his death. The relief – for him and me- was substantial as his admission allowed us to take in the DME, such as a hospital bed, which had been out of reach for the previous months. He was able to pass peacefully in our family room viewing his beloved Onondaga Lake. Being able to depend upon the nurses and home health sides at that time was a gift from God.

    • What a relief for you and Bob! What a shame that the system (in which you work!) is so dysfunctional that you only accessed hospice a week before Bob’s passing. You should have been made aware of hospice months before. The DME (durable medical equipment) should have been in place long before his death. We need to get the word out, fellow RN and friend.

  3. Sadly, when I worked in the MICU, I saw this a lot. Physicians really need to bring up end of life decision making before a crisis occurs, despite the anger and pain it may cause, with the entire family. I’m thrilled to see things are changing somewhat.

    • Ironically, at that meeting I attended, I suggested that since the docs were uncomfortable broaching the subject, perhaps they should hire a social worker who could. The suggestion was literally brushed away. The moderator waved his hand in the air. I turned to the social worker sitting next to me and asked what was wrong with my suggestion. She shook her head and said, “nothing.” Perhaps families need nurses or social workers to empower them to say “enough is enough,” and leave it to God and not ICUs!

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